The emotional toll
When an infant arrives prematurely, the family faces a stressful new world. Often, the parents see the baby only for a moment before he or she is whisked away to the neonatal intensive care unit (NICU).
Instead of taking home a healthy newborn, parents spend hours in the hospital, talking to all kinds of specialists. The medical equipment that is helping the baby is frightening. The doctors and nurses use clinical words that parents don't understand. And the busy, hectic atmosphere in the NICU is stressful. Often the mother, feeling lonely and sad, leaves the hospital before the baby does.
Many preterm infants face life-threatening complications. Things can change very quickly. One day the baby appears to be doing well; the next, hope seems to be lost. Families with premature infants often refer to the NICU as a roller-coaster experience.
Day-to-day life is completely disrupted. Parents spend hours in the NICU, away from their other children and their jobs. Sometimes the NICU stay can last for months, and often the facility is located miles from home. Families face financial stress as they struggle to pay the high NICU costs.
Facing important decisions about their baby, families find that marriages and relationships are tested as never before. How do we share the time in the NICU? How do we manage the household? How do we find time for our other children and for ourselves? What do we tell others about the new baby? The baby's siblings may feel worried—and left out.
If you have an infant in a NICU, visit Share Your Story, the March of Dimes online community for families who have a premature baby.
Frequently Asked Questions
How does the Campaign work to achieve its goals?
The campaign funds research to find the causes of premature birth, and to identify and test promising interventions; educates health care providers and women about risk-reduction strategies; advocates to expand access to health care coverage to improve maternity care and infant health outcomes; provides information and emotional support to families affected by prematurity; and generates concern and action around the problem.
What are the goals of the March of Dimes Prematurity Campaign?
The goals of the Prematurity Campaign are to reduce the rate of premature birth, and to raise public awareness about the seriousness of the problem.
Why is the problem of prematurity so important?
Prematurity is the leading killer of America's newborns. Those who survive often have lifelong health problems, including cerebral palsy, intellectual disabilities, chronic lung disease, blindness and hearing loss.