KEEP LEARNING
The learning and growing doesn’t stop here.
Check out these additional resources to expand your stigma knowledge and find more ways to create change.
WEBSITES
- Make It Ok (HealthPartners Inc.) – focuses on mental health stigma: https://makeitok.org/
TOOLS AND TOOLKITS
- Combating Stigma Within the Michigan Mental Health System: A Toolkit for Change (Michigan Department of Community Health)
https://www.michigan.gov/documents/mdch/A_Toolkit_for_Change_403480_7.pdf - Understanding Drug-Related Stigma: Tools for Better Practice and Social Change – Curriculum Outline for Trainers (The Harm Reduction Coalition)
https://harmreduction.org/wp-content/uploads/2012/02/stigma-facilitators.pdf - Anti-Stigma Toolkit: Guide to Reducing Addiction-Related Stigma (Addiction Technology Transfer Center Network)
https://attcnetwork.org/centers/central-east-attc/anti-stigma-toolkit-guide-reducing-addiction-related-stigma - Stigmafree (National Alliance on Mental Illness)
https://www.nami.org/stigmafree - Understanding and Challenging HIV Stigma – Toolkit For Action (International Center for Research on Women)
https://www.icrw.org/wp-content/uploads/2016/10/Understanding-and-Challenging-HIV-Stigma-Toolkit-for-Action.pdf - Unconscious Bias (Vanderbilt University, Office of Equity, Diversity and Inclusion)
https://www.vanderbilt.edu/diversity/unconscious-bias/ - Teaching Tolerance: Test Yourself for Hidden Bias (Southern Poverty Law Center)
https://www.tolerance.org/professional-development/test-yourself-for-hidden-bias - Culture, Beliefs, Attitudes, and Stigmatized Illnesses – Cultural Lens and How Culture Influences Your Perceptions (Lumen Learning)
https://courses.lumenlearning.com/diseaseprevention/chapter/culture-beliefs-attitudes-and-stigmatized-illnesses/ - The Art of Ending Stigma Infographic (Champions of Science: The Art of Ending Stigma)
http://www.artofendingstigma.com/node/36
VIDEO/AUDIO
- “I am NOT Black, You are NOT White” (Prince Ea, American rapper and spoken word artist)
https://www.youtube.com/watch?v=q0qD2K2RWkc#action=share - “Stop the Stigma” (New Horizons Behavioral Health)
https://www.youtube.com/watch?v=DWaOsPiv-gw - Mental Illness Awareness Week Video Series (National Alliance on Mental Illness)
https://www.nami.org/get-involved/awareness-events/mental-illness-awareness-week
ARTICLES
- Measuring Health-Related Stigma – A Literature Review. Van Brakel, W.H. (2006). Psychology, Health & Medicine, 11(3), 307-334.
https://www.tandfonline.com/doi/full/10.1080/13548500600595160 - Stigma as a Fundamental Cause of Population Health Inequalities. Hatzenbuehler, M.L., Phelan, J.C., & Link, B.G. (2013). American Journal of Public Health, 103(5), 813-821.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3682466/ - The Health Stigma and Discrimination Framework: A Global, Crosscutting, Framework to Inform Research, Intervention Development, and Policy on Health-Related Stigmas. Stangl, A.L. et al. (2019). BMC Medicine, 17, 31.
https://doi.org/10.1186/s12916-019-1271-3 - The Impact of Mental Illness Stigma on Seeking and Participating in Mental Health Care. Corrigan, P.W., Druss, B.G., & Perlick, D.A. (2014). Psychological Science in the Public Interest, 15(2), 37-70.
https://journals.sagepub.com/stoken/rbtfl/dDpyhM2zRi.Fg/full - What Reduces Sexual Minority Stress? A Review of the Intervention “Toolkit”. Chaudoir, S.R., Wang, K., & Pachankis, J.E. (2017). Journal of Social Issues, 73(3), 586-617.
https://pubmed.ncbi.nlm.nih.gov/29170566/ - Intervening Within and Across Levels: A Multilevel Approach to Stigma and Public Health. Cook, J.E., Purdie-Vaughns, V., Meyer, I.H., & Busch, J.T. (2014). Social Science & Medicine, 103, 101-109.
https://www.sciencedirect.com/science/article/abs/pii/S0277953613005297 - A Systematic Review of Multi-Level Stigma Interventions: State of the Science and Future Directions. Rao, D., Elshafei, A., Nguyen, M., Hatzenbuehler, M.L., Frey, S., & Go, V.F. (2019). BMC Medicine, 17(1), 41.
https://bmcmedicine.biomedcentral.com/articles/10.1186/s12916-018-1244-y - Interventions to Reduce Stigma Related to Mental Illnesses in Educational Institutes: a Systematic Review. Waqas, Ahmed et al. The Psychiatric quarterly vol. 91,3 (2020): 887-903.
https://pubmed.ncbi.nlm.nih.gov/32372401/ - A systematic review of stigma in sexual and gender minority health interventions. Layland, Eric K. et al. Translational behavioral medicine vol. 10,5 (2020): 1200-1210.
https://pubmed.ncbi.nlm.nih.gov/33044540/
The Health and Discrimination Framework
The health and discrimination framework figure below shows the stigmatization process as it unfolds across the socioecological health spectrum. To “underscore that all individuals can anticipate, perceive, internalize, experience, or perpetuate health-related stigma,” the framework does not distinguish between those who are “stigmatized” and the “stigmatizer” (Stangl et al., 2019, p. 4).
- The framework begins with the drivers and facilitators of health-related stigma. Although the drivers are “inherently negative”—for example, stereotypes and prejudice—facilitators may be either positive or negative influences, such as cultural or social norms and health policy.
- These drivers and facilitators determine whether stigma “marking” occurs. This is when stigma is “applied to people or groups according to a specific health condition or other perceived difference such as race, class, gender, sexual orientation or occupation” (Stangl et al., 2019, p. 2).
- Stigma then manifests in a range of stigma experiences – or lived realities, which can include perceived stigma, self-stigma, and discrimination.
- Stigma also manifests in practices, which can include beliefs (such as stereotypes), attitudes (such as prejudice), and actions (such as discrimination) toward people in a stigmatized group.
- These types of stigma can influence outcomes for individuals within a stigmatized or affected population, including access to and acceptance of healthcare services. Stigma can also influence outcomes for organizations and institutions.
- These population and organizational outcomes can then have health and social impacts, including affecting rates of illness and death, quality of life, and social inclusion and well-being.
This framework is useful in helping to identify when, where, and how to make changes to reduce stigma.
Open pdf of figure to zoom larger.
Figure Source: Stangl et al., 2019
Cooper, S., & Nielsen, S. (2017). Stigma and social support in pharmaceutical opioid treatment populations: A scoping review. International Journal of Mental Health and Addiction, 15(2), 452–469. http://dx.doi.org/10.1007/s11469-016-9719-6
Corrigan, P.W., Druss, B.G., & Perlick, D.A. (2014). The impact of mental illness stigma on seeking and participating in mental health care. Psychological Science in the Public Interest, 15(2), 37–70. https://doi.org/10.1177/1529100614531398
Corrigan, P.W., & Nieweglowski, K. (2018). Stigma and the public health agenda for the opioid crisis in America. International Journal on Drug Policy, 59, 44–49. http://dx.doi.org/10.1016/j.drugpo.2018.06.015
Dawson, D.A., Grant, B.F., Stinson, F.S., Chou, P.S., Huang, B., & Ruan, W.J. (2005). Recovery from DSM-IV alcohol dependence: United States, 2001–2002. Addiction, 100(3), 281–292. http://dx.doi.org/10.1111/j.1360-0443.2004.00964.x
Hatzenbuehler, M.L., Phelan, J.C. & Link, B.G.(2013. Stigma as a fundamental cause of population health inequities. American Journal of Public Health. Am J Public Health.103:813–821. doi:10.2105/AJPH.2012.301069
Howard, H. (2015). Reducing stigma: Lessons from opioid-dependent women. Journal of Social Work Practice in the Addictions, 15(4), 418–438. http://dx.doi.org/10.1080/1533256X.2015.1091003
Johnson, L.A., Schrier, A.M., Swanson, M., Moye, J.P., & Ridner, S. (2019). Stigma and quality of life in patients with advance lung cancer. Oncology Nursing Forum, 46(3), 318–328. doi:10.1188/19.ONF.318-328
Kamaradova, D., Latalova, K., Prasko, J., Kubinek, R., Vrbova, K., Mainerova, B., … Tichackova, A. (2016). Connection between self-stigma, adherence to treatment, and discontinuation of medication. Patient preference and adherence, 10, 1289–1298. doi:10.2147/PPA.S99136 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4966500/pdf/ppa-10-1289.pdf
Latkin, C.A., Gicquelais, R.E., Clyde, C., Dayton, L., Davey-Rothwell, M., German, D., …Tobin, K. (2019). Stigma and drug use settings as correlates of self-reported, non-fatal overdose among people who use drugs in Baltimore, Maryland. International Journal of Drug Policy, 68, 86–92. doi:10.1016/j.drugpo.2019.03.012
Livingston, J.D., Milne, T., Fang, M.L., & Amari, E. (2012). The effectiveness of interventions for reducing stigma related to substance use disorders: A systematic review. Addiction, 107(1), 39–50. doi: 10.1111/j.1360-0443.2011.03601.x
Mannheimer, S., Wang, L., Wilton, L., Tieu, H.V., del Rio, C. … Mayer, K.H. on behalf of the HPTN 061 Study Team. (2014). Infrequent HIV testing and late HIV diagnosis are common among a cohort of black men who have sex with men (BMSM) in six US cities. Journal of Acquired Immune Deficiency Syndrome, 67(4), 438–445. doi:10.1097/QAI.0000000000000334
National Academy of Sciences, Engineering and Medicine. (2016). Ending discrimination against people with mental and substance use disorders: The evidence for stigma change. Washington, DC: The National Academies Press. https://doi.org/10.17226/23442
Pescosolido, B.A. (2013). The public stigma of mental illness: What do we think; what do we know; what can we prove? Journal of Health and Social Behavior, 54(1), 1–21. https://doi.org/10.1177%2F0022146512471197
Stangl, A.L., Earnshaw, V.A., Logie, C.H., van Brakel, W., Simbayi, L.C., Barré, I., & Dovidio, J.F. (2019). The Health Stigma and Discrimination Framework: A global, crosscutting framework to inform research, intervention development, and policy on health-related stigmas. BMC Medicine, 17, 31. https://doi.org/10.1186/s12916-019-1271-3
van Brakel, W.H., Cataldo, J., Grover, S., Kohrt, B.A., Nyblade, L., Stockton, M., Wouters, E., & Yang, L.H. (2019). Out of the silos: identifying cross-cutting features of health-related stigma to advance measurement and intervention. BMC Medicine, 17, 13. https://doi.org/10.1186/s12916-018-1245-x