About March of Dimes NICU Innovation
NICU Innovation seeks to improve the long-term health outcome of NICU graduates by focusing on improving the families’ NICU experience. We do this through the implementation of an established set of resources designed to advance communication, collaboration and partnership between families, health care organizations and the March of Dimes. The main focus of NICU Innovation is implementation of the program of NICU Family Support, education through the NICU Training Institute, and the online community ShareYourStory.org.
The March of Dimes NICU Family Support® (NFS) program offers information and support to NICU families. Since the inception of three pilot programs in 2001, the program has expanded to over 100 NICUs across 49 states, Washington, D.C., and Puerto Rico. March of Dimes partners with NICUs to implement services designed to make the NICU experience better. NICU Family Support is implemented by a March of Dimes NICU Family Support Program Coordinator who provides education, information and bedside support to families. Some hospitals choose to only distribute printed materials and provide online access to information and education, but regardless of how hospitals choose to collaborate with us, we work together to improve the NICU experience for families. When families leave the NICU, hospitals can refer them to ShareYourStory.org, the March of Dimes online community for NICU families. This free resource allows families to connect with each other around shared experiences.
Share Your Story
For almost 14 years, the March of Dimes online community Share Your Story (ShareYourStory.org) has been an invaluable resource for families to find support from other members who are living with the effects of prematurity, birth defects, newborn or pregnancy loss.
ShareYourStory.org provides families with a safe environment for them to share their stories, find and provide emotional/parent-to-parent support and ask questions of other mission-affected families and March of Dimes health education professionals. It also has a team of 45 volunteers, March of Dimes technical staff and a licensed social worker who maintain and manage the site 24/7/365 and make sure that all users feel welcomed and every single post has at least three answers.
My NICU BabyTM App
The NICU can be an overwhelming place. You most likely have questions and concerns: What can I expect when first entering the NICU? Who are all these people caring for my baby? What do I need to know before I take my baby home? Now help is at your fingertips during and after your stay with the My NICU Baby App from March of Dimes. Download it to get the latest information to improve your family’s experience and find helpful resources to stay on top of your baby’s progress in the NICU and beyond.
March of Dimes is with you through every stage of the pregnancy journey, even when everything doesn’t go according to plan, providing support to all moms and babies when they need it.
Use My NICU Baby to:
- Learn about caring for your baby in the NICU and at home through videos and text
- Track your baby’s feeding and weight
- Track pumping and kangaroo care sessions
- Take photos and add filters
- Get ready to take your baby home with a customizable checklist
- Manage your own health with a postpartum visit questionnaire
- Keep track of health providers, your to-do list and questions with a notes feature
- Connect with other families through the App
My NICU Baby is available for free on the App Store and Google Play. More information on the app can be found here.
March of Dimes Community Facebook Group
Families across the nation join the March of Dimes Community group on Facebook to find support, comfort and friendship. They can get advice on the challenges they’re experiencing from a caring group and also learn about March of Dimes and local initiatives. Join today at www.facebook.com/groups/marchofdimes.