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Maternal & Infant Health Research Registries

During the pandemic, tracking health outcomes is essential to improving care, developing policies and understanding the impact of this pandemic on maternal and infant health. Learn more about global research and registries that are tracking the data to ensure the health of mothers and babies.

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COVID-19 Resources & Literature

A resource compiling up-to-date published literature on COVID-19 relating to mothers and babies. We have gathered scientifically sound research to help guide further studies or keep you up to date with the maternal child health population and COVID-19.

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  • FAS: Fetal Alcohol Syndrome
  • Three state surveillance programs only collect Zika related birth defects (Alabama, Pennsylvania and New Hampshire). New Hampshire collected only Zika related birth defects from 2016-2017; collection after 2017 will be for all recommended birth defects.
  • All programs have statewide surveillance coverage, except Pennsylvania and California.
  • Active case ascertainment - A surveillance approach to case identification that is based on surveillance staff being engaged intensively in all activities related to finding and confirming potential birth defects cases. Surveillance staff seek out data sources and conduct systematic investigations of pertinent sources of information to identify potential cases of birth defects. Data collection sites include hospital medical records, diagnostic indices, unit logs, pathology departments, and specialty sites.
  • Passive case ascertainment - A surveillance approach to case identification whereby birth defects programs receive case reports from data sources. Passive case ascertainment programs receive case reports from one or many different data sources and may accommodate multiple reporting formats including hard copy, electronic, and web-based reports, as well as administrative data sets. There may be variability in the completeness and accuracy of case ascertainment in programs that use this type of case ascertainment. Programs without case confirmation do not perform verification of the information received from data sources, while programs with case confirmation use various methods to verify the reported diagnosis.
  • Hybrid case ascertainment - A surveillance approach that uses a combination of active and passive ascertainment (with or without case confirmation). This could indicate that active or passive case ascertainment was used to obtain a certain percentage of all reportable cases, or to obtain only select birth defects.


  • National Birth Defects Prevention Network (2019). 2019 Congenital Malformations Surveillance Report: A report from the National Birth Defects Prevention Network. 111(18), S1-S180.