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March of Dimes - Rhode Island Chapter

220 West Exchange St. #003

Providence, RI  02903

(401) 454-1911

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    March of Dimes Public Affairs - 2013 NJ Highlights

    , , —

    NJ Specific Highlights

    • Proclamation from Governor Christie declaring January 2013 as Birth Defect Prevention Month
    • Advocacy Meetings with the following New Jersey Legislators:
      • Assemblyman Jason O’Donnell, Senator Loretta Weinberg, Assemblywoman Pamela Lampitt to discuss newborn screening legislation and Health Babies Are Worth the Wait Program.
    • Successful liaising with about half of the legislators (>50) from NJ’s Assembly and Senate in support of passing the budget for $1.6 million for Newborn Screening and to support Medicaid Expansion.
    • Participation in letter writing campaigns and advocacy efforts to secure funding for $1.6 million for Newborn Screening and to support NJ’s Medicaid Expansion.
    • An effective high level meeting with Governor Christie’s staff to discuss MOD priorities for Newborn Screening and Medicaid Expansion. We met with:
      • David Weinstein, Senior Policy Advisor
      • Bob Schwaneberg, Health Care Policy Advisor
      • Ryan Goodwin, Assistant Counsel/Legislative Liaison
      • Colin Newman, Senior Counsel
    • An Interview with 101.5 radio station and an appearance on Assemblyman Thomas Giblin’s cable talk show to discuss the 2013 advocacy priorities.
    • Participation in the National March of Dimes Advocacy & Government Affairs Conference.
    • A resolution from the Trenton City Council declaring November Prematurity Awareness Month and recognizing the March of Dimes.

    Federal Highlights

    • Lobbying on Capitol Hill with staff from Representatives Leonard Lance, Bill Pascrell, Frank Pallone, Rodney Frelinghuysen and Senator Robert Menendez. The federal lobby agenda included:
      • Co-sponsorship and support to pass the Newborn Screening Saves Lives Reauthorization Act  (S. 1417/ H.R. 1281)
      • Protection of Medicaid, sustaining research and prevention funding, and preservation of the charitable tax deduction during budget negotiations
      • Swift passage of the PREEMIE Reauthorization Act (S. 252/ H.R. 541) in the House

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